Why you’re here

Have you or your child been diagnosed with a rare inherited anaemia? You can read more about:

• Diamond-Blackfan Anaemia (DBA)
• CDA
• Sideroblastic anaemia (CSA)
• Red cell membrane disorders (eg. Hereditary spherocytosis, hereditary elliptocytosis, pyropoikilocytosis)
• Red cell enzyme disorders (eg. pyruvate kinase deficiency, G6PD deficiency)

Are you or your child receiving blood transfusions regularly but you have been told it has not been possible to make a diagnosis about the condition?

Are you worried you or your child might have a rare inherited anaemia but you have not had any tests yet from blood specialists?

Please contact us on info@togetherwecan.uk for help and advice.

Who We Are

1. We want patients with rare inherited anaemias to be able to meet each other (virtually or in reality) and help and support each other. Find us on Facebook

2. We want to give out reliable information about rare inherited anaemias and get your questions answered by doctors in the field. Ask us a question about one of these conditions on Facebook or by email, and we’ll answer it.

3. We want to raise money to fund research so we can better understand these conditions and improve the diagnosis and treatments available. Help us fundraise – contact info@togetherwecan.uk.