Why you’re here
Have you or your child been diagnosed with a rare inherited anaemia? You can read more about:
- Diamond-Blackfan Anaemia (DBA)
- Sideroblastic anaemia (CSA)
- Red cell membrane disorders (eg. Hereditary spherocytosis, hereditary elliptocytosis, pyropoikilocytosis)
- Red cell enzyme disorders (eg. pyruvate kinase deficiency, G6PD deficiency)
Are you or your child receiving blood transfusions regularly but you have been told it has not been possible to make a diagnosis about the condition?
Are you worried you or your child might have a rare inherited anaemia but you have not had any tests yet from blood specialists?
Please contact us on firstname.lastname@example.org for help and advice.
You can get in touch with us if you would like to meet other patients with rare inherited anaemias.
We have a 6-monthly family get-together that we would love you to attend.
At CAN we value your input, feedback and opinions. Please don’t hesitate to contact us and give any insight or ask
any questions you feel would help to build our community or put you at ease. We’re here to help, so use the form below and we’ll be in touch as soon as possible.
Alternatively, you can also use our community forum.
Who We Are
We want patients with rare inherited anaemias to be able to meet each other (virtually or in reality) and help and support each other. Find us on Facebook
We want to give out reliable information about rare inherited anaemias and get your questions answered by doctors in the field. Ask us a question about one of these conditions on Facebook or by email, and we’ll answer it.
We want to raise money to fund research so we can better understand these conditions and improve the diagnosis and treatments available. Help us fundraise – contact email@example.com.
Great North Run – www.greatrun.org/great-north-run
CAN has places available! If you can raise £200 then CAN can offer a guaranteed paid for place and snazzy CAN-branded T-shirt or Running vest. Drop us a line at firstname.lastname@example.org and book your place!