Dr James Davies, consultant haematologist and researcher at the University of Oxford, explains how new genetic technologies are providing hope of a cure for sickle cell disease and thalassaemia. Click the title to find the link.

Do you want to know more about how the Covid vaccine was developed so quickly and safely? Here is a 15 minute video explaining everything you need to know about this amazing vaccine. Click on the title ‘Covid Vaccine’ for the link.

Robi’s initial presentation at birth and diagnosis Robi is a young boy aged 8 who was diagnosed with Congenital Dyserythropoietic Anaemia type 1 (CDA-1) as a young baby. Red blood cells contain a protein called haemoglobin that lets blood carry oxygen around the body. What is CDA-1? People with CDA-1 make red blood cells more […]

The Government have lengthened the shielding date to June 30th.  More information will be available closer to that date.  

Summary of CAN Q&A on March 27th 2020   These are the key points that came out of the live Q&A.  The information is correct as of 27.03.2020- further Government guidance may be issued and reviewed by the National Haemoglobinopathy Panel.  Please contact info@togetherwecan.uk if you have any queries.   Introduction Please remember the guidance […]

This is a great short video where you can hear Chris talk about Sickle Cell Disease.  Let’s all talk about it: https://www.bbc.co.uk/news/av/stories-49852948/sickle-cell-disease-i-wanted-to-get-people-talking

What a wonderful way to start the summer! 120 patients, families, friends, carers, all got together in Oxford to share food, new experiences (yoga!), facepainting, tennis, crafts, a small petting zoo and lots of meeting with old and new friends. Under the beaming sunshine, we were exchanged stories, supported each other, and enthused everyone to […]

CAN was pleased to support the James Lind Alliance in their Priority Setting Partnership.  People with rare inherited anaemias, their carers, and health professionals all worked together to identify the most important areas for future research. You can read the full report here: Rare Inherited Anaemias PSP_FINAL REPORT

We have produced a leaflet about Hereditary Spherocytosis, which we hope you will find useful. HS_CAN_leaflet