Emma Buysman, CAN supporter and parent of Lucas, who has Pyruvate Kinase Deficiency was invited to represent CAN at the British Society of Haematology Annual Scientific Meeting, a conference for those from the world of blood specialists and those who provide support. Here, Emma shares her experience.
The annual event includes a packed agenda of presentations, case studies and seminars for clinicians, health care professionals as well as trainees and other interested parties to learn what’s new and upcoming in haematology. Guests also get to hear about innovations, new policy and developing research, as well as discussing patient care generally.
Charitable Patient Support Groups such as CAN are invited to exhibit on stands and it was a brilliant experience to meet with like-minded volunteers who represent patients with both rare blood disorders, alongside those with more well-known conditions.
We made some important progress in highlighting the existence of our charity’s activities and patient support, with the aim of encouraging and indeed highlighting the need for all levels of medical care professionals to refer patients to CAN for guidance, advice and simply to be a part of shared experiences from other families.
