\n\t\n\tA Patient\u2019s Perspective on Pyruvate Kinase Deficiency<\/a><\/h2>\n\n        \n                  <\/div>\n\t\n\t\n\t\t<\/div>\nTim\u2019s parents found out that he had a genetic anaemia called pyruvate kinasedeficiency (PKD) before he was born. PKD is an inherited condition resultingfrom two mutations in DNA that affect the pyruvate kinase enzyme in red bloodcells. Pyruvate kinase is an enzyme that helps cells convert sugar into energy in aprocess called glycolysis. Red blood […]<\/p>\n<\/div>\n<\/p>\n\t<\/div>\n\n\t\n\t\n\t\t\t\t\t\n\t\t\t\tPosted in<\/span> News<\/a>\t\t\t<\/span>\n\t\t\t|<\/span>\n\t\t\t\t\t\tComments Off on A Patient\u2019s Perspective on Pyruvate Kinase Deficiency<\/span><\/span><\/span>\n\t\t\t<\/div>\n<\/div>\n\n\n\n\n\n\n\t\n\tDr James explains potential new treatments using gene editing<\/a><\/h2>\n\n        \n                  <\/div>\n\t\n\t\n\t\t<\/div>\nDr James Davies, consultant haematologist and researcher at the University of Oxford, explains how new genetic technologies are providing hope of a cure for sickle cell disease and thalassaemia. Click the title to find the link.<\/p>\n<\/div>\n<\/p>\n\t<\/div>\n\n\t\n\t\n\t\t\t\t\t\n\t\t\t\tPosted in<\/span> News<\/a>\t\t\t<\/span>\n\t\t\t|<\/span>\n\t\t\t\t\t\tComments Off on Dr James explains potential new treatments using gene editing<\/span><\/span><\/span>\n\t\t\t<\/div>\n<\/div>\n\n\n\n\n\n\n\t\n\tCovid Vaccine<\/a><\/h2>\n\n        \n                  <\/div>\n\t\n\t\n\t\t<\/div>\nDo you want to know more about how the Covid vaccine was developed so quickly and safely? Here is a 15 minute video explaining everything you need to know about this amazing vaccine. Click on the title ‘Covid Vaccine’ for the link.<\/p>\n<\/div>\n<\/p>\n\t<\/div>\n\n\t\n\t\n\t\t\t\t\t\n\t\t\t\tPosted in<\/span> News<\/a>\t\t\t<\/span>\n\t\t\t|<\/span>\n\t\t\t\t\t\tComments Off on Covid Vaccine<\/span><\/span><\/span>\n\t\t\t<\/div>\n<\/div>\n\n\n\n\n\n\n\t\n\tRobi’s story- living with CDA Type 1- by Myah Kenth<\/a><\/h2>\n\n        \n                  <\/div>\n\t\n\t\n\t\t<\/div>\nRobi\u2019s initial presentation at birth and diagnosis Robi is a young boy aged 8 who was diagnosed with Congenital Dyserythropoietic Anaemia type 1 (CDA-1) as a young baby. Red blood cells contain a protein called haemoglobin that lets blood carry oxygen around the body. What is CDA-1? People with CDA-1 make red blood cells more […]<\/p>\n<\/div>\n<\/p>\n\t<\/div>\n\n\t\n\t\n\t\t\t\t\t\n\t\t\t\tPosted in<\/span> News<\/a>\t\t\t<\/span>\n\t\t\t|<\/span>\n\t\t\t\t\t\tComments Off on Robi’s story- living with CDA Type 1- by Myah Kenth<\/span><\/span><\/span>\n\t\t\t<\/div>\n<\/div>\n\n\n\n\n\n\n\t\n\tUpdate to Shielding Date- June 30th<\/a><\/h2>\n\n        \n                  <\/div>\n\t\n\t\n\t\t<\/div>\nThe Government have lengthened the shielding date to June 30th.\u00a0 More information will be available closer to that date.  <\/p>\n<\/div>\n<\/p>\n\t<\/div>\n\n\t\n\t\n\t\t\t\t\t\n\t\t\t\tPosted in<\/span> News<\/a>\t\t\t<\/span>\n\t\t\t|<\/span>\n\t\t\t\t\t\tComments Off on Update to Shielding Date- June 30th<\/span><\/span><\/span>\n\t\t\t<\/div>\n<\/div>\n\n\n\n\n\n\n\t\n\tSummary of Covid-19 Q&A on March 27, 2020<\/a><\/h2>\n\n        \n                  <\/div>\n\t\n\t\n\t\t<\/div>\nSummary of CAN Q&A on March 27th 2020   These are the key points that came out of the live Q&A.\u00a0 The information is correct as of 27.03.2020- further Government guidance may be issued and reviewed by the National Haemoglobinopathy Panel.\u00a0 Please contact info@togetherwecan.uk if you have any queries.   Introduction Please remember the guidance […]<\/p>\n<\/div>\n<\/p>\n\t<\/div>\n\n\t\n\t\n\t\t\t\t\t\n\t\t\t\tPosted in<\/span> News<\/a>\t\t\t<\/span>\n\t\t\t|<\/span>\n\t\t\t\t\t\tComments Off on Summary of Covid-19 Q&A on March 27, 2020<\/span><\/span><\/span>\n\t\t\t<\/div>\n<\/div>\n\n\n\n\n\n\n\t\n\tLet's Talk about Sickle Cell Disease<\/a><\/h2>\n\n        \n                  <\/div>\n\t\n\t\n\t\t<\/div>\nThis is a great short video where you can hear Chris talk about Sickle Cell Disease.\u00a0 Let’s all talk about it: https:\/\/www.bbc.co.uk\/news\/av\/stories-49852948\/sickle-cell-disease-i-wanted-to-get-people-talking<\/p>\n<\/div>\n<\/p>\n\t<\/div>\n\n\t\n\t\n\t\t\t\t\t\n\t\t\t\tPosted in<\/span> News<\/a>\t\t\t<\/span>\n\t\t\t|<\/span>\n\t\t\t\t\t\tComments Off on Let's Talk about Sickle Cell Disease<\/span><\/span><\/span>\n\t\t\t<\/div>\n<\/div>\n\n\n\n\n\n\n\t\n\tCAN Family party- July 7th<\/a><\/h2>\n\n        \n                  <\/div>\n\t\n\t\n\t\t<\/div>\nWhat a wonderful way to start the summer! 120 patients, families, friends, carers, all got together in Oxford to share food, new experiences (yoga!), facepainting, tennis, crafts, a small petting zoo and lots of meeting with old and new friends. Under the beaming sunshine, we were exchanged stories, supported each other, and enthused everyone to […]<\/p>\n<\/div>\n<\/p>\n\t<\/div>\n\n\t\n\t\n\t\t\t\t\t\n\t\t\t\tPosted in<\/span> News<\/a>\t\t\t<\/span>\n\t\t\t|<\/span>\n\t\t\t\t\t\tComments Off on CAN Family party- July 7th<\/span><\/span><\/span>\n\t\t\t<\/div>\n<\/div>\n\n\n\n\n\n\n\t\n\tTop 10 Research Priorities<\/a><\/h2>\n\n        \n                  <\/div>\n\t\n\t\n\t\t<\/div>\nCAN was pleased to support the James Lind Alliance in their Priority Setting Partnership.\u00a0 People with rare inherited anaemias, their carers, and health professionals all worked together to identify the most important areas for future research. You can read the full report here:\u00a0Rare Inherited Anaemias PSP_FINAL REPORT<\/p>\n<\/div>\n<\/p>\n\t<\/div>\n\n\t\n\t\n\t\t\t\t\t\n\t\t\t\tPosted in<\/span> News<\/a>\t\t\t<\/span>\n\t\t\t|<\/span>\n\t\t\t\t\t\tComments Off on Top 10 Research Priorities<\/span><\/span><\/span>\n\t\t\t<\/div>\n<\/div>\n\n\n\n\n\n\n\t\n\tHereditary Spherocytosis Leaflet<\/a><\/h2>\n\n        \n                  <\/div>\n\t\n\t\n\t\t<\/div>\nWe have produced a leaflet about Hereditary Spherocytosis, which we hope you will find useful. HS_CAN_leaflet<\/p>\n<\/div>\n<\/p>\n\t<\/div>\n\n\t\n\t\n\t\t\t\t\t\n\t\t\t\tPosted in<\/span> News<\/a>\t\t\t<\/span>\n\t\t\t|<\/span>\n\t\t\t\t\t\tComments Off on Hereditary Spherocytosis Leaflet<\/span><\/span><\/span>\n\t\t\t<\/div>\n<\/div>\n\n\n<\/code><\/p>\n","protected":false},"excerpt":{"rendered":"Here’s our latest news.<\/p>\n","protected":false},"author":3,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"nf_dc_page":"","om_disable_all_campaigns":false,"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"jetpack_sharing_enabled":true,"_links":{"self":[{"href":"https:\/\/togetherwecan.uk\/wp-json\/wp\/v2\/pages\/310"}],"collection":[{"href":"https:\/\/togetherwecan.uk\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/togetherwecan.uk\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/togetherwecan.uk\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/togetherwecan.uk\/wp-json\/wp\/v2\/comments?post=310"}],"version-history":[{"count":0,"href":"https:\/\/togetherwecan.uk\/wp-json\/wp\/v2\/pages\/310\/revisions"}],"wp:attachment":[{"href":"https:\/\/togetherwecan.uk\/wp-json\/wp\/v2\/media?parent=310"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}