About us

Find out more about our Board of Trustees below.

Headshot of Noemi smiling

Noémi Roy

Noémi is a consultant haematologist at Oxford University Hospitals NHS Trust and Associate Professor at the University of Oxford.  She looks after adults living with sickle cell disease, thalassaemia and rare inherited anaemias.

Headshot of Lesley smiling

Lesley McCarthy

Lesley is a registered children’s nurse with many years of experience working in both hospitals and the community setting. As a Specialist Nurse at Oxford University Hospitals NHS Trust, she provides care and support across the Thames Valley to children and young people living with Sickle cell disease, Thalassaemia and rare inherited anaemias. 

Edward Hibbert

Edward works in IT for charities. He is on the Board of Freegle (which helps people give and get things for free), Give A Kidney (which encourages live kidney donation), and Volunteer Edinburgh (which promotes volunteering in the city).

Resina Chowdhury

Resina has beta thalassemia and is also the parent of a child with a rare anaemia, CDA type 1. She works part time as a social worker.                                                                                                                                          

Headshot of Trustee, Christian Babbs

Christian Babbs

Christian is a scientist with an interest in human genetics and how red blood cells are made. The focus of his work is to understand the causes of anaemia, with the aim of developing novel therapies through genome editing approaches and better understanding the mechanism of interferon treatment in CDA-I anaemia.