CAN recently hosted its annual cinema event in Reading for the third time, with a viewing of 'Kangaroo'. Maria and Anoushka, who have been volunteering for CAN for their Duke of Edinburgh Award, share their experience.
We're excited to announce that we are hosting another Family Day in 2026. This year's all-day event will take place on Saturday 27 June in Oxford. Take a look at our Family Day link for photos from one of our previous events.
Benefits Advisor Robert Mandelstam recently delivered a webinar to share information about the benefits you may be entitled to if you have or support someone with a rare condition, and advice about how to apply for them.
We provide a round-up of discussions, presentations, guest conversations and key takeaways from CAN's Congenital Dyserythropoietic Anaemia, Type 1 (CDA-1) conference held in Leeds, 7-9 November 2025.
CAN Trustee and Learning Disability Nurse, Funmi, plans to research how cognitive difficulties may impact the lives of people living with Sickle Cell and is looking for supporters to talk to to help support with this research project.
Scientific research is essential in promoting our understanding of rare diseases and for developing novel and life-changing therapies. CAN is funding Dr Brolih's work using a variety of biochemical and biophysical techniques to characterise CDIN1, the disease protein of CDA-1.
We share a video insight into what is involved when you go to hospital for a blood transfusion. It was made by a young person who has beta-thalassemia major and who attends Royal Manchester Children's Hospital for his transfusions.
Thank you to the South West Haemoglobinathy Coordinating Centre for welcoming CAN to its first Thalassaemia and Rare Inherited Anaemia in-person patient event in Bristol. This was organised and hosted in collaboration with the Red Cell Network.
John was born in Nigeria but has called Oxford home for more than a decade. He has learned to transform the lifelong pain of living with Sickle Cell Disorder into creative power. He shares more about his published poetry with us.
A big thank-you to teens Robi and Lucas who raised more than a whopping £2,000 to help CAN continue our work. Both boys have rare anaemia diseases that make them more tired so to participate in long walks is really admirable and CAN is so grateful to them both.
