We are a group of patients, carers, doctors, and scientists who are all interested in patients with rare inherited anaemia.

Our Mission

We want patients with rare inherited anaemias to be able to meet each other (virtually or in reality) and help and support each other. Find us on Facebook
We want to give out reliable information about rare inherited anaemias and get your questions answered by doctors in the field. Ask us a question about one of these conditions on Facebook or by email, and we’ll answer it.
We want to raise money to fund research so we can better understand these conditions and improve the diagnosis and treatments available. Help us fundraise – contact info@togetherwecan.uk.

Why you're here

Have you or your child been diagnosed with a rare inherited anaemia? You can read more about:

Diamond-Blackfan Anaemia (DBA)
CDA
Sideroblastic anaemia (CSA)
Red cell membrane disorders (eg. Hereditary spherocytosis, hereditary elliptocytosis, pyropoikilocytosis)
Red cell enzyme disorders (eg. pyruvate kinase deficiency, G6PD deficiency)

Are you or your child receiving blood transfusions regularly but you have been told it has not been possible to make a diagnosis about the condition? Are you worried you or your child might have a rare inherited anaemia but you have not had any tests yet from blood specialists? Please contact us on info@togetherwecan.uk for help

Stories

Date announced for 2026 Family Day!

We're excited to announce that we are hosting another Family Day in 2026. This year's all-day event will take place on Saturday 27 June in Oxford. Take a look at our Family Day link for photos from one of our previous events.

New webinar on benefit support

Benefits Advisor Robert Mandelstam recently delivered a webinar to share information about the benefits you may be entitled to if you have or support someone with a rare condition, and advice about how to apply for them.

2025 CDA-1 conference: our round-up

We provide a round-up of discussions, presentations, guest conversations and key takeaways from CAN's Congenital Dyserythropoietic Anaemia, Type 1 (CDA-1) conference held in Leeds, 7-9 November 2025.

Can you contribute to new research?

CAN Trustee and Learning Disability Nurse, Funmi, plans to research how cognitive difficulties may impact the lives of people living with Sickle Cell and is looking for supporters to talk to to help support with this research project.

Information Leaflets

Hereditary Sperocytosis information sheet

Read more about Hereditary Sperocytosis in our information sheet.

Starting uni with Sickle Cell Disease

We offer hints and tips on starting university if you have SCD

Transfusion Pathway

Read more about this Pathway for people living with Sickle Cell Disorder.

Hydroxycarbamide Pathway

Find out more about the Hydroxycarbamide pathway in our information sheet.